Stressors from Caregiving for Cardiovascular Diseases: Insights from a Community-based Cross-sectional Study in New Delhi

Authors

  • Prabhjeet Kaur Lady Hardinge Medical College https://orcid.org/0009-0001-8560-7156
  • Manish Kumar Goel Lady Hardinge Medical College, New Delhi
  • Josyula Gnana Prasuna Lady Hardinge Medical College, New Delhi

Keywords:

Caregiving stressors, cardiovascular diseases, caregiver health,

Abstract

Background: Providing care for chronic conditions at home imposes various responsibilities on caregivers, affecting financial, physical, emotional, and social domains. Over time, these responsibilities can accumulate and become significant stressors. Aims & Objectives: The study aims to assess the magnitude, factors and reasons of stressors faced by caregivers of cardiovascular diseases (CVD). Material and Methods: Community-based cross-sectional study was conducted in Delhi. A sample of 384 households was obtained through systematic random sampling. The sampling unit was the household, and the study units were the primary caregivers of individuals with cardiovascular diseases. Results: Among 384 caregivers, 223 (58%) were female, and 50.3% were spouses of the patients. The magnitude of stressors ranged from 79.4% to 90.4%. The main stressors identified were economic burden (70.8%), knowledge about the medical condition (67.7%), and changed patient behavior (65.6%). Significant associations were found between stressors and certain socio-demographic factors (such as occupation and relationship to the patient) as well as disease-related factors (such as duration of caregiving, regularity of treatment, patient condition, ADL impairment, and multimorbidity of CVD). Conclusion: These results highlight the dyadic relationship between patients and caregivers, emphasizing that caregivers are a high-risk group that also requires attention and support.

Downloads

Download data is not yet available.

References

Pearlin L, Mullan J, Semple J, Skaff M. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist.1990; 30: 583-94

World Health Organisation. Non-Communicable Diseases fact sheet. World Health Organisation; 2023. Available from: https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases. Accessed on 06/05/2024

Prabhakaran D, Jeemon P, Roy A. Cardiovascular Diseases in India: Current Epidemiology and Future Directions. Circulation; 2016;133(16): 1605-20

Das S, Hazra A, Ray B, Banerjee T, Roy T,Chaudhuri A, et al. Burden Among Stroke Caregivers: Result of a Community Based Study From Kolkata, India. Stroke.2010; 41:2965-8

Walke S, Chandrasekeran V, Mayya S.Caregiven burden among caregivers of mentally Ill individuals and their coping mechanisms. J Neurosciences in rural practice. 2018; 9(2): 180-85.

Brinda EM, Rajkumar AP, Enemark U, Attermann J, Jacob KS. Cost and burden of informal caregiving of dependent older people in a rural Indian community. BMC Health Serv Res.2014;14 (207):1-9.

Kate N, Grover S, Kulhara P, Nehra R. Positive aspects of caregiving and its correlates in caregivers of schizophrenia: a study from north India. East Asian Arch Psychiatry. 2013; 23(2):45-55.

Dirikkan F, Baysan Arabac? L, Mutlu E. The caregiver burden and the psychosocial adjustment of caregivers of cardiac failure patients. Turk Kardiyol Dern Ars. 2018;46(8):692-701.

Cabral L,Duarte J, Ferreira M, Dossantos C. Anxiety, stress and depression in family caregivers of the mentally ill. Aten Primarica.2014;46:176-9

Verma S, Sayal A, Vijayan VK, Rizvi SM, Talwar A. Caregiver's burden in pulmonary arterial hypertension: a clinical review. J Exerc Rehabil. 2016;12(5):386-92.

Family Caregiver Alliance. Caregiver Assessment: Principles, Guidelines and Strategies for Change. Report from a National Consensus Development Conference. Family Caregiver Alliance; 2006. Available from: http://www.caregiver.org/caregiver/jsp/content/pdfs/v1_consensus.pdf. Accessed on 19/4/2024

National Alliance for Caregiving/AARP. Caregiving in the US. National Alliance for Caregiving/AARP; 2004. Available from: http://assets.aarp.org/rgcenter/il/us_caregiving_1.pdf. Accessed on 24/04/2024

Collins LG, Swartz K. Caregiver care. Am Fam Physician. 2011;83(11):1309-17.

Anderson G, Knickman J. Changing the chronic care system to meet people's needs. Health Aff. 2001;20(6):146-60.

McCullagh E, Bridgestocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke.2005;36(10):2181-6

International Institute for Population Sciences (IIPS) and ICF.National Family Health Survey (NFHS-5), 2019-21, India: Volume I. Mumbai: IIPS.2021.

Wani RT. Socioeconomic status scales-modified Kuppuswamy and Udai Pareekh's scale updated for 2019. J Family Med Prim Care. 2019 Jun;8(6):1846-1849.

Dhandapani M, Gupta S, Dhandapani S, et al. Study of factors determining caregiver burden among primary caregivers of patients with intracranial tumors. Surg Neurol Int. 2015;6:160.

Published

2024-10-28

How to Cite

1.
Kaur P, Goel MK, Prasuna JG. Stressors from Caregiving for Cardiovascular Diseases: Insights from a Community-based Cross-sectional Study in New Delhi. Indian J Community Health [Internet]. 2024 Oct. 28 [cited 2024 Nov. 4];36(5). Available from: https://iapsmupuk.org/journal/index.php/IJCH/article/view/2981

Issue

Section

Original Article

Dimensions Badge